I will be participating in a 12 km mud run to raise awareness and money to support the organization of MSS research foudation. MMS, also known as Marshall-Smith Syndrome is a rare syndrome with only 50 childeren and adults known to have this syndrome worldwide. My cousin has MSS and I want to raise awareness and support him as much as I can and by raising funds I will be able to help the reseach therefore imporving his quailty of life.
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F. Krijgsheld to team memberRick De Jong
€ 20
25-09-2021
Anonymous to team memberRick De Jong
€ 25
19-09-2021
Anonymous to team memberRick De Jong
€ 20
30-08-2021
G. de Jong van Rij to team memberRick De Jong
€ 10
30-08-2021
O. de Jong to team memberRick De Jong
€ 20
30-08-2021
Anonymous to team memberRick De Jong
€ 25
29-08-2021
Anonymous to team memberRick De Jong
€ 25
29-08-2021
L. Remmerswaal to team memberRick De Jong
€ 25
29-08-2021
The campaigners have not yet published any updates.
MSS (Marshall-Smith Syndrome) Research Foundation
Het Marshall-Smith syndroom (MSS) is een zeldzaam ernstig syndroom. De MSS Research Foundation wil de positie van kinderen met MSS verbeteren, lotgenotencontact organiseren, meer bekendheid geven aan MSS en wetenschappelijk onderzoek naar MSS mogelijk maken.
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